Another move in the works.......

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VenomJockey

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Big meeting between all my doctors, the hospice care people, my hospital social worker, and, of course, me, has determined they all want me to move into a private nursing home October 1st, if the insurance companies and VA can get signed off on everything in time. They want me in a more "closely supervised" environment. I have continued to lose weight even though I eat like a starving pig. Doc says they have got to get this weight loss under control and going the other direction, or it's gonna be bad news on down the line. Lose enough weight, and the body's organs begin to become dysfunctional. He has ordered me on a special diet of 4-5 small, high calorie, high protein, high fat, meals a day. He has also ordered a prescription for "Marinol," 5mg twice a day, which is synthetic medical marijuana, as an "appetite enhancer." The Rheumatologist has ordered hydrotherapy for my lower back, hips, and legs. The Pulmonary Specialist has ordered that oxygen be available 24/7, either through a wall line, tank, or oxygen generator. And they have me taking Oxycodone 10mg every 4 hours, and Morphine timed release pills 15mg every 12 hours.

The key words here seem to be "more closely supervised," than at the ALC. The one they are shooting for is an upscale, private nursing home, which provides a ton of "amenities." Wi-Fi, Cable, snacks/coffee room open 24/7, shopping trips, field trips, chess club, bridge club, etc. Except for more limited movement, doesn't seem to be much different than here. I took the grand tour of the place, and it's not bad, except movement is definitely more limited.....you have one private room, rather than an apartment. Place ain't "cheap," either....$5,322 monthly base cost., but that's the insurance company's/VA's headache, not mine, thank Heaven!!

At any rate, if everyone gets signed off in time, I'll be moving there October 1st...or November 1st, if they are a little slow in getting all the signatures on the dotted lines.
 
Hoping you can "help" the VA along. . . They tend to drag their feet around here. Glad that they and insurance can cover the nursing home cost. It gets expensive real quick otherwise. Mom bought her husband one of those oxygen portable generators since he has COPD real bad and his breathing gets effected when traveling at higher elevations. It seems to help a lot.
 
Hoping you can "help" the VA along. . . They tend to drag their feet around here. Glad that they and insurance can cover the nursing home cost. It gets expensive real quick otherwise. Mom bought her husband one of those oxygen portable generators since he has COPD real bad and his breathing gets effected when traveling at higher elevations. It seems to help a lot.

The VA has no medical domiciliaries in Alabama aside fro,m mental health facilities, so they are chipping in on costs for the private nursing home. The VA just built a huge new clinic in Mobile, and the VA Medical Center in Biloxi is top notch...never had a problem with getting seen in either Mobile or Biloxi. The VA Rep's Offices are pretty good, too...they really do try to help. There are good VA Centers, and then there are the "not-so-good" ones.....fortunately Mobile/Biloxi have the "good" ones. I suspect the oxygen therapy will be via the "portable generator" thing...that seems to be the way they are all going now. From what I saw on the "grand tour" of the place, it is pretty nice, though, obviously, it is more restrictive than the Assisted Living Center. I'll manage!
 
I would lose what is left of my mind cooped up in one of those places,,,,,,,,,,,,,,,,get better and get out

Appreciate the thought, but there is no "getting better." It is what it is, and it happens to us all sooner or later. No one gets out out this life alive!! Lung cancer, COPD/emphysema, rheumatoid arthritis, thyroid issues, and now a new small tumor in the ole liver. Back on chemo, with all it's lovely side effects.
 
Appreciate the thought, but there is no "getting better." It is what it is, and it happens to us all sooner or later. No one gets out out this life alive!! Lung cancer, COPD/emphysema, rheumatoid arthritis, thyroid issues, and now a new small tumor in the ole liver. Back on chemo, with all it's lovely side effects.
I am sorry to hear that,,,,that is a rough road....
 

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